journal of biomedical informatics
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Ed Conley

Dr, SHiELD Horizon 2020 and Connected Health Cities Projects, AIMES, The Innovation Park, L7 9NJ, United Kingdom


  • Original Article   
    GDPR Compliance Challenges for Interoperable Health Information Exchanges (HIEs) and Trustworthy Research Environments (TREs)
    Author(s): Ed Conley* and Matthias Pocs

    Background: We present our current approaches to improving personal data protection in (i) large (regional/ national/international) scale health information exchanges (HIEs) and (ii) UK NHS IG toolkit and ISO 27001-compliant trustworthy research environments (TREs) for discovery science communities. In particular we examine impacts of the General Data Protection Regulation (GDPR) on these technology designs and developments and the responses we have made to control complexity. Methods: The paper discusses multiple requirements to implement the key GDPR principles of “data protection by design” and “data protection by default”, each requiring new capabilities to embed multiple security tests and data protection tools in common deployable infrastructures. Methods a.. Read More»
    DOI: 10.24105/ejbi.2018.14.3.7